Speaking About Disability with Confidence: Language, Universal Design, and Inclusion

Written by Suzie Birchwood | Dec 15, 2025 2:42:13 PM
Talking about language, especially around minority groups, can sometimes make people nervous. But that nervousness usually comes from a good place: a desire to get it right. If you’re worried about saying the wrong thing, it means you care and that’s a great starting point.
It’s also important to remember that language isn’t fixed; it evolves over time, shaped by culture, experience, and conversation. What matters most is being open to learning and listening.
This article offers an invitation: to explore ableist language not with fear of getting it wrong, but with curiosity, generosity, and a shared commitment to creating spaces where everyone can participate fully...

 

From the Social Model to the Affirmative Model of Disability

The foundation of much of my work is the social model of disability, developed by disabled activists who challenged the idea that disability lives in the body.

In this model:

  • Impairment is the lived experience in a body or mind.
  • Disability is created by barriers, social, attitudinal, architectural, economic, that exclude people with impairments.

A wheelchair user isn’t “disabled by their legs”; they’re disabled by a building with no lift.
A neurodivergent person isn’t “limited by their brain”; they’re limited by systems designed only for neurotypical processing.

This shift, from “what’s wrong with you?” to “what’s wrong with the world you’re moving through?”, has been transformative. It moves responsibility away from individual bodies and onto the environments and structures that exclude.

But the social model, powerful as it is, often focuses on barriers and problems. That’s where the affirmative model of disability adds something vital.

The affirmative model:

  • understands disability as a positive identity, not just an experience of exclusion,
  • recognises disabled life as a source of culture, creativity, and community,
  • makes space for joy, pride, aesthetics, and meaning in disabled experiences,
  • doesn’t deny difficulty or pain, but refuses to let them be the only story.

Where the social model says, “The world disables us; it needs to change,” the affirmative model adds, “And our disabled lives are valuable, rich, and worth celebrating in their own right.”

For me, this combination is crucial. The social model gives us a framework to challenge injustice and redesign systems. The affirmative model gives us permission to embrace disability as an integral, beautiful part of who we are, not a tragedy to minimise or hide.

Both models shape how I think about language. Are we speaking about disabled people as problems to be managed, or as people whose lives, bodies, and perspectives enrich our communities?

What is Ableism?

Ableism is discrimination in favour of non-disabled people. Disablism is discrimination against disabled people.

Both describe systems and attitudes that assume:

  • disability is inherently negative,
  • disabled lives are less valuable,
  • disabled people require correction or pity,
  • “normal” is something to aspire to.

These ideas don’t only appear in laws or policies, they embed themselves in everyday speech.

Examples of Ableist Language

Some phrases are overtly harmful. Others are so embedded in our vocabulary that we barely register them:

  • “What’s wrong with you?”
  • “You don’t look disabled.”
  • “Confined to a wheelchair.”
  • “Suffering from…”
  • “You’re such an inspiration!”
  • “I’m so OCD/bipolar/ADHD today.”
  • “Fall on deaf ears.”
  • “Turn a blind eye.”

Most people don’t use these phrases with harmful intent. But language shapes culture, and culture shapes who gets to feel safe, respected, and equal.

As disability activist Jamie Hale writes: “Dismantling ableist structures doesn’t start with language, but building a world without them requires that we change our language.”

Why Language Matters

Language does more than describe the world; it builds it.

When someone says “wheelchair-bound,” it frames the chair as a prison. But my wheelchair is freedom, dignity, and independence. It carries me through airports, onto stages, and into classrooms. Without it, I am limited, not by my body, but by inaccessible design.

When someone tells me, “At least I’m not in a wheelchair like you,” I’m reminded how deeply ableist assumptions run. They assume disability is the worst-case scenario. For me, it’s simply one aspect of a rich, creative life.

Changing language isn’t about being politically correct, it’s about telling a more accurate story of disability, one that honours variation and human dignity.

Talking About Disability with Confidence

People often panic about getting it wrong. But inclusive language is much simpler and kinder than it seems.

A few general principles:

  1. Use “disabled people,” not “able-bodied or normal people,” when referring to communities, this aligns with the social model and challenges hierarchies.
  2. Describe, don’t dramatise: “uses a wheelchair,” not “confined to.”
  3. Avoid pity language: “suffers from,” “afflicted by,” “victim of.”
  4. Don’t use disability as metaphor (“blind to the truth,” “deaf to feedback”).
  5. Ask rather than assume. If you’re unsure how someone wishes to be described, ask respectfully.
  6. Respect self-chosen identity labels. Disabled people may use reclaimed or non-standard language for themselves that shouldn’t be generalised to others.
  7. Keep it literal: If you mean “ignore”, say “ignore” not “fall on deaf ears.”
Inclusive Language in Practice: My Work as a Dance Educator

Dance language is full of action verbs like “walk,” “run,” “jump,” and precise limb instructions. But this assumes bodies work in the same way.

I prefer phrases like:

  • “Travel across the room,”
  • “Come to an upright position,”
  • “Reach to your furthest point,”
  • “Find your rebound.”

This isn’t softening the work, it’s expanding the possibilities.

As a wheelchair-using dancer, I may not “jump,” but give me “rebound” and watch what I can create. Inclusive language is not about limitation; it is about opening the door to each dancer’s creativity.

My favourite phrase with my children, one borrowed from the wonderful dancer and choreographer Marc Brew, is: “Let’s roll and stroll.”

Universal Design: Beyond Access, Toward Creativity

My understanding of disability and inclusion broadened when I began working with Jurg Koch, who adapted principles of Universal Design for contemporary dance. Together, we asked:

What if ballet itself - not just the studio - could be redesigned to welcome more bodies, not fewer?

Universal design asks us to:

  • start with a blank page,
  • assume diversity from the beginning,
  • build spaces that work for everyone without separate adaptations.

This thinking transformed my artistic life, but it also changed how I move through the world. It reframed disability not as a limitation to be negotiated, but as a source of perspective, creativity, and problem-solving.

Ableism in Media and the Stories We Tell

I often notice how disabled people are portrayed in media, and how much those portrayals shape public attitudes. A few years ago, a photographer approached me during a performance project and asked if he could take a “powerful, empowering shot” of me standing at the barre while my wheelchair sat in the background. His idea was to show me “overcoming” something.

He meant well. But the message beneath the image he wanted was unmistakable:

Freedom = standing
Burden = the chair

For him, the chair symbolised something tragic or limiting. For me, it’s simply a tool, an enabling, joyful, and essential part of my life. Without it, I would be far more restricted.

This kind of imagery is everywhere: disabled people photographed away from their mobility aids, captions celebrating “defying the odds,” narratives centred on overcoming rather than living.

These stories flatten the complexity of disabled experience. They erase disabled pride, culture, creativity, and identity. They reinforce the idea that worthiness is tied to how closely one can approximate a non-disabled ideal.

We deserve stories that celebrate disabled people not for escaping disability, but for embodying it, fully, proudly, and without apology.

Mobility Aids: Tools of Power, Not Symbols of Lack

Mobility aids are simply tools, extensions of the body that enable participation. Some people use them all the time, some intermittently, and some not at all. The need fluctuates, but the stigma remains stubbornly fixed.

Yet mobility aids open possibility:

  • A wheelchair enables speed, travel, independence.
  • Crutches can create elegant, sweeping lines in dance.
  • Chairs can hover and glide in ways standing bodies cannot.

Seeing aids as “sad” or “limiting” tells us more about ableist culture than about disability itself.

Radical Access: Moving Beyond Accommodation

While compliance and accommodations matter, they are only the beginning. Radical access asks us to transform the culture, not simply make exceptions.

Radical access means:

  • designing with disabled people from the start,
  • anticipating varied needs,
  • embracing interdependence instead of independence as the gold standard,
  • creating environments where no one has to ask permission to belong.

This is slow work. Political work. Cultural work. Relationship work. But it is also joyful work.

Access as Relationship

Access isn’t a checklist, it’s a commitment to one another.

True inclusion grows from:

  • trust,
  • openness,
  • shared responsibility,
  • willingness to be wrong and repair,
  • willingness to listen even when uncomfortable.

Discomfort is not failure; it is the beginning of change.

Moving Forward

Ableist language has been passed down for generations, mostly without malice. Now that we notice it, we gain the chance to speak, and act, differently.

There is no perfect vocabulary. There is only intentionality, learning, and care.

So ask yourself:
What’s one small shift I could make this week?
One phrase I could retire?
One conversation I could open?

Language shapes culture. Culture shapes access. Access shapes possibility.

Let’s build a world where everyone’s possibilities can flourish, not by exception, but by design.